What are your chronic illnesses?

I am often asked what chronic illnesses I suffer from. Rambling off a list of rare diseases is usually not helpful so I created a list for you.

I included the date of diagnosis, but symptoms of the disease sometimes started years before.

  • Polymyositis 1986
  • Myasthenia Gravis 2001
  • Lupus 2005 which was later changed to Undifferentiated Connective Tissue Disease 2013
  • Recurrent Acute Pancreatitis 2005
  • Adrenal Insufficiency 2013
  • Gastroparesis 2013
  • Dysautonomia/P.O.T.S. 2014
  • Chronic Migraines
  • Chronic Anemia
  • Ehlers Danlos Syndrome 2017
  • Mast Cell Activation Disease 2017

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